Engellilik Araştırmaları Yazıları

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DOI :10.26650/B/SS46.2022.013.13   IUP :10.26650/B/SS46.2022.013.13    Tam Metin (PDF)

Hastanede Yatan Zihinsel Engelli Çocuklar ve Annelerinin Karşılaştığı Güçlükler: Annelerin Perspektifinden

Ayfer Aydın, Aslı Akdeniz Kudubeş, Eyşan Hanzade Umaç, Münever Aslan, İpek Bertan

Zihinsel engelli çocukların uzun süreli tedavi ve bakıma ihtiyaçları vardır. Bu nedenle, sıklıkla tekrarlayan hastaneye yatışlar yaşarlar ve taburcu olma süreleri, genel popülasyona göre daha uzundur. Hastanede hem çocuk hem de ailesi bazı zorluklar yaşar. Bu çalışmanın amacı zihinsel engelli çocuğu hastanede yatarak tedavi alan annelerin karşılaştıkları güçlüklerin ve bu güçlükleri etkileyen faktörlerin belirlenmesidir. Tanımlayıcı çalışmanın verileri Ağustos-Aralık 2020 tarihleri arasında Qualtrics online veri toplama aracı kullanılarak toplanmıştır. Verilerin toplanmasında Sosyodemografik Bilgi Anketi ve Zihinsel Engelli Çocuğu Olan Annelerin Karşılaştıkları Güçlükler Anketi kullanılmıştır. Çalışmaya toplamda 182 anne katılmıştır. Çalışmaya katılan annelerin %55.5’i 30-39 yaş aralığında ve %31.3’ü lisans eğitimine sahiptir. Çocuğunda Down sendromu, otizm ve serebral palsi tanısı olan annelerin Zihinsel Engelli Çocuğu Olan Annelerin Karşılaştıkları Güçlükler Anketi’nden aldıkları toplam puan ortalamalarının daha yüksek olduğu ve annelerin bu süreçte sağlık çalışanları ile iletişim kurmakta zorlandıkları ve bilgi gereksinimlerinin olduğu saptanmıştır. Sağlık çalışanlarının engelli çocuk ve anneleri ile iletişim kurabilmeleri için gerekli eğitimsel bilgi ve beceri desteği sağlanmalıdır. Bu doğrultuda gerekli kurumsal, çevresel ve yasal düzenlemelerin gerçekleştirilmesi gereklidir.


Anahtar Kelimeler: Zihinsel engellilik, Bakım, Çocuk, Anne, Hastane
DOI :10.26650/B/SS46.2022.013.13   IUP :10.26650/B/SS46.2022.013.13    Tam Metin (PDF)

Challenges Faced by Children with Intellectual Disability and Their Mothers During Hospitalization: Mothers’ Perspectives

Ayfer Aydın, Aslı Akdeniz Kudubeş, Eyşan Hanzade Umaç, Münever Aslan, İpek Bertan

Children with intellectual disabilities (ID) need long-term treatment and care. So, they frequently experience recurring hospital admissions, and their length of hospital stay tends to be longer than those without intellectual. In hospital, both the child and his/her family experience some challenges. The aim of this study is to explore the challenges and the influencing factors faced by mothers when their children are hospitalized. The data of the descriptive study were collected between August and December 2020 using the Qualtrics online data collection tool. Sociodemographic Information Questionnaire and Questionnaire for Difficulties Encountered by Mothers of Children with ID were used to collect the data. A total of 182 mothers participated in the study. 55.5% of the mothers participating in the study were between the ages of 30-39 and 31.3% had undergraduate education. It was determined that the mean scores of mothers with a diagnosis of Down syndrome, autism and cerebral palsy in their children were higher in the Questionnaire of the Difficulties Encountered by Mothers of Children with ID, and that mothers had difficulties in communicating with healthcare professionals during this process and needed information. The educational should be provided, and the physical environment should be arranged for health care workers to communicate effectively with children with intellectual disabilities and their mothers.


Anahtar Kelimeler: Intellectual disability, Care, Child, Hospital, Mothers

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