BÖLÜM


DOI :10.26650/B/CH32.2024.010.037   IUP :10.26650/B/CH32.2024.010.037    Tam Metin (PDF)

Serebral Palsi̇ Sorunu Olan Çocuğun İzlemi̇ ve Toplumda Bakımı

Fuat BilgiliMehmet Demirel

Serebral palsi, ilerleyici olmayan bir lezyon sonucu ortaya çıkan gelişimsel bir hareket ve postür bozukluğudur. Serebral palsisi olan çocuklar karşımıza çok geniş yelpazede klinik bulgular ile gelebilmektedir. Kaba motor fonksiyon sınıflandırma sistemi fonksiyonel durumun belirlenmesinde en sık kullanılan sistemdir. Sağlıkla ilgili yaşam kalitesi ise fiziksel işlevsellik, psikolojik sorunlar, sosyal işlevsellik, semptomlar ve engellilik ölçümlerini içerir. Serebral palsi, çoğunlukla spastisite ve yaşam kalitesini olumsuz yönde etkileyen çoklu komorbiditeler oluşturan çeşitli ortopedik bozukluklarla ilişkilidir. Günümüzde serebral palsinin henüz şifa ile sonlanacak tedavisi yoktur, ancak multidisipliner tedavi ve izlem yaklaşımı hastalığın doğal seyrini değiştirebilir ve bu durumdaki çocukların hayata katılımlarını ve yaşam kalitesini iyileştirebilir. Serebral palsisi olan çocukların tedavi ve izlemleri esnasında sık karşılaşılan sorunlar; zihinsel yetersizlik, spastisite ve distoni, yürüyememe, ağrı yönetimi, kalça eklemi sorunları, omurga eğrilikleri, konuşma ve iletişim sorunları, mesane kontrol sorunları, epilepsi, davranış ve görme bozuklukları ve körlük, işitme kaybı, uyku bozuklukları, beslenme, yutma ve gastrointestinal sistem bozukluklarıdır. Ortopedik izlemlerdeki en önemli nokta kalça çıkığının önlenmesidir. Serebral palside eşlik eden birçok karmaşık bozukluk nedeniyle tedavi ve takip için multidisipliner bir ekibe ihtiyaç vardır. Tedavi planının çocuğun bireysel ihtiyaçlarına göre ayarlanmasında multidisipliner ekip önemlidir. Bu bölümde serebral palsisi olan çocukların tedavi ve izlem süreçlerinde ortopedik yaklaşım ve klinisyenlerin dikkat etmesi gereken esaslar üzerinde durulacaktır. 


DOI :10.26650/B/CH32.2024.010.037   IUP :10.26650/B/CH32.2024.010.037    Tam Metin (PDF)

Follow-up and Community Care of the Child with Cerebral Palsy

Fuat BilgiliMehmet Demirel

Cerebral palsy (CP) is a developmental movement and posture disorder caused by a nonprogressive lesion. In children, CP manifests variably. Gross motor function classification system is the most frequently used system in determining functional status. Health-related quality of life is measured based on physical functioning, psychological problems, social functioning, symptoms, and disability. CP is most often associated with orthopedic disorders due to spasticity and multiple comorbidities that negatively affect the quality of life. However, there remains no cure for CP, but a multidisciplinary treatment and follow-up can change the natural course of the disease and improve the participation and quality of life of children with CP. Mental disability, spasticity and dystonia, inability to walk, pain management, hip joint problems, spinal curvatures, speech and communication problems, bladder control problems, epilepsy, behavioral and visual disorders and blindness, hearing loss, sleep disorders, nutrition, swallowing, and gastrointestinal system disorders are common problems during treatment and follow-up. Meanwhile, orthopedic follow-up is aimed at avoiding the dislocation of the hip joint. Given the several complexities of CP, a multidisciplinary team is needed to make the necessary adjustments in the treatment plan based on the child’s individual needs. This chapter presents the orthopedic approach and fundamental principles in the treatment and follow-up of children with CP.



Referanslar

  • 1. Bax M, Goldstein M, Rosenbaum P, Leviton A, Paneth N, Dan B, et al. Proposed definition and classification of cerebral palsy, April 2005. Developmental medicine and child neurology. 2005; 47: 571-6. google scholar
  • 2. The Australian Cerebral Palsy Register Report 2016. Erişim: chrome-extension://efaidnbmnnnibpcajpcglc-lefindmkaj/https://cpregister.com/wp-content/uploads/2018/05/ACPR-Report_Web_2016.pdf. Son erişim tarihi: 1.8.2023. google scholar
  • 3. Jacobsson B, Hagberg G. Antenatal risk factors for cerebral palsy. Best practice & research Clinical obstet-rics & gynaecology. 2004; 18: 425-36. google scholar
  • 4. Wimalasundera N, Stevenson VL. Cerebral palsy. Pract Neurol. 2016; 16: 184-94. google scholar
  • 5. Executive summary: Neonatal encephalopathy and neurologic outcome, second edition. Report of the Ame-rican College of Obstetricians and Gynecologists’ Task Force on Neonatal Encephalopathy. Obstet Gynecol. 2014; 123: 896-901. google scholar
  • 6. Johnson A. Prevalence and characteristics of children with cerebral palsy in Europe. Developmental medi-cine and child neurology. 2002; 44: 633-40. google scholar
  • 7. Vitrikas K, Dalton H, Breish D. Cerebral palsy: an overview. American family physician. 2020; 101: 213-20. google scholar
  • 8. Novak I, Hines M, Goldsmith S, Barclay R. Clinical prognostic messages from a systematic review on cerebral palsy. Pediatrics. 2012; 130: e1285-e312. google scholar
  • 9. O’Shea TM. Diagnosis, treatment, and prevention of cerebral palsy in near-term/term infants. Clinical obstetrics and gynecology. 2008; 51 : 816. google scholar
  • 10. Graham D, Paget SP, Wimalasundera N. Current thinking in the health care management of children with cerebral palsy. Medical Journal of Australia. 2019; 210: 129-35. google scholar
  • 11. Winkler PW, Rupp MC, Lutz PM, Geyer S, Forkel P, Imhoff AB, et al. A hinge position distal to the adductor tubercle minimizes the risk of hinge fractures in lateral open wedge distal femoral osteotomy. Knee Surgery, Sports Traumatology, Arthroscopy. 2021; 29: 3382-91. google scholar
  • 12. Palisano RJ, Cameron D, Rosenbaum PL, Walter SD, Russell D. Stability of the gross motor function clas-sification system. Developmental medicine and child neurology. 2006; 48: 424-8. google scholar
  • 13. Harb A, Kishner S. Modified ashworth scale. StatPearls [Internet]: StatPearls Publishing; 2021. google scholar
  • 14. Morris SL, Williams G. A historical review of the evolution of the Tardieu Scale. Brain injury. 2018; 32: 665-9. google scholar
  • 15. Koman LA, Smith BP, Shilt JS. Cerebral palsy. Lancet. 2004; 363: 1619-31. google scholar
  • 16. Landgraf JM, Abetz L, Ware J. The child health questionnaire user’s manual. Boston: The Health Institute, New England Medical Center. 1996;199. google scholar
  • 17. Daltroy LH, Liang MH, Fossel AH, Goldberg MJ. The POSNA pediatric musculoskeletal functional health questionnaire: report on reliability, validity, and sensitivity to change. Journal of Pediatric Orthopaedics. 1998; 18: 561-71. google scholar
  • 18. Varni JW, Seid M, Kurtin PS. PedsQL™ 4.0: Reliability and validity of the Pediatric Quality of Life Inven-tory™ Version 4.0 Generic Core Scales in healthy and patient populations. Medical care. 2001: 800-12. google scholar
  • 19. Schneider JW, Gurucharri LM, Gutierrez AL, Gaebler-Spira DJ. Health-related quality of life and functional outcome measures for children with cerebral palsy. Developmental Medicine and Child Neurology. 2001; 43: 601-8. google scholar
  • 20. Krigger KW. Cerebral palsy: an overview. American family physician. 2006; 73: 91-100. google scholar
  • 21. Patel DR, Neelakantan M, Pandher K, Merrick J. Cerebral palsy in children: a clinical overview. Translati-onal pediatrics. 2020; 9: S125. google scholar
  • 22. El Tantawi NT, Abd Elmegid DS, Atef E. Seizure outcome and epilepsy patterns in patients with cerebral palsy. Seizure. 2019; 65: 166-71. google scholar
  • 23. Shevell M. Quality standards subcommittee of the american academy of neurology; practice committee of the child neurology society. Practice parameter: evaluation of the child with global developmental delay: report of the quality standards subcommittee of the american academy of neurology and the practice com-mittee of the child neurology society. Neurology. 2003; 60: 367-80. google scholar
  • 24. Depositario-Cabacar DFT, Zelleke TG. Treatment of epilepsy in children with developmental disabilities. Developmental Disabilities Research Reviews. 2010; 16: 239-47. google scholar
  • 25. National Clinical Guideline Centre (UK). The Epilepsies: The Diagnosis and Management of the Epilepsies in Adults and Children in Primary and Secondary Care: Pharmacological Update of Clinical Guideline 20. London: Royal College of Physicians (UK); 2012 Jan. google scholar
  • 26. Russman BS, Ashwal S, editors. Evaluation of the child with cerebral palsy. Seminars in pediatric Neuro-logy; 2004: Elsevier. google scholar
  • 27. Reid SM, Meehan EM, Arnup SJ, Reddihough DS. Intellectual disability in cerebral palsy: a population-ba-sed retrospective study. Developmental Medicine & Child Neurology. 2018; 60: 687-94. google scholar
  • 28. Pennington L, Goldbart J, Marshall J. Speech and language therapy to improve the communication skills of children with cerebral palsy. Cochrane Database of Systematic Reviews. 2004(2). google scholar
  • 29. Carlsson M, Olsson I, Hagberg G, Beckung E. Behaviour in children with cerebral palsy with and without epilepsy. Developmental Medicine & Child Neurology. 2008; 50: 784-9. google scholar
  • 30. Pelaez Cantero MJ, Moreno Medinilla EE, Cordon Martmez A, Gallego Gutierrez S. [Comprehensive ap-proach to children with cerebral palsy]. An Pediatr (Engl Ed). 2021. google scholar
  • 31. Rice J, Baker F, Russo R. The spectrum of movement disorders in a cerebral palsy population. Dev Med Child Neurol. 2016; 58: 47. google scholar
  • 32. Heinen F, Desloovere K, Schroeder AS, Berweck S, Borggraefe I, van Campenhout A, et al. The updated European Consensus 2009 on the use of Botulinum toxin for children with cerebral palsy. European journal of paediatric neurology. 2010; 14: 45-66. google scholar
  • 33. Graham HK, Aoki KR, Autti-Ramö I, Boyd RN, Delgado MR, Gaebler-Spira DJ, et al. Recommendations for the use of botulinum toxin type A in the management of cerebral palsy. Gait & posture. 2000; 11: 67-79. google scholar
  • 34. Huser A, Mo M, Hosseinzadeh P. Hip surveillance in children with cerebral palsy. Orthopedic Clinics. 2018; 49: 181-90. google scholar
  • 35. Shrader MW, Wimberly L, Thompson R. Hip surveillance in children with cerebral palsy. JAAOS-Journal of the American Academy of Orthopaedic Surgeons. 2019; 27: 760-8. google scholar
  • 36. Robb J, Hagglund G. Hip surveillance and management of the displaced hip in cerebral palsy. Journal of children’s orthopaedics. 2013; 7: 407-13. google scholar
  • 37. Wren TA, Dryden JW, Mueske NM, Dennis SW, Healy BS, Rethlefsen SA. Comparison of 2 orthotic ap-proaches in children with cerebral palsy. Pediatric Physical Therapy. 2015; 27: 218-26. google scholar
  • 38. Shore BJ, White N, Kerr Graham H. Surgical correction of equinus deformity in children with cerebral palsy: a systematic review. Journal of children’s orthopaedics. 2010; 4: 277-90. google scholar
  • 39. Proesmans M. Respiratory illness in children with disability: a serious problem? Breathe. 2016; 12: e97-e103. google scholar
  • 40. Cantero MJP, Medinilla EEM, Martmez AC, Gutierrez SG. Comprehensive approach to children with ce-rebral palsy. Anales de Pediatria (English Edition). 2021; 95: 276. el-. e11. google scholar
  • 41. Dahlseng MO, Andersen GL, DA GRACA ANDRADA M, Arnaud C, Balu R, De la Cruz J, et al. Gastros-tomy tube feeding of children with cerebral palsy: variation across six European countries. Developmental Medicine & Child Neurology. 2012; 54: 938-44. google scholar
  • 42. Ozel S, Switzer L, Macintosh A, Fehlings D. Informing evidence-based clinical practice guidelines for children with cerebral palsy at risk of osteoporosis: an update. Developmental Medicine & Child Neurology. 2016; 58: 918-23. google scholar
  • 43. Alriksson-Schmidt A, Jarl J, Rodby-Bousquet E, Lundkvist Josenby A, Westbom L, Himmelmann K, Sta-dskleiv K, Ödman P, Svensson I, Antfolk C, Malesevic N, Jeglinsky I, Saha S, Hagglund G. Improving the Health of Individuals With Cerebral Palsy: Protocol for the Multidisciplinary Research Program MOVING ON WITH CP. JMIR Res Protoc. 2019; 8: e13883. google scholar
  • 44. Parkinson KN, Dickinson HO, Arnaud C, Lyons A, Colver A. Pain in young people aged 13 to 17 years with cerebral palsy: cross-sectional, multicentre European study. Archives of disease in childhood. 2013; 98: 434-40. google scholar
  • 45. Kingsnorth S, Orava T, Provvidenza C, Adler E, Ami N, Gresley-Jones T, et al. Chronic pain assessment tools for cerebral palsy: a systematic review. Pediatrics. 2015; 136: e947-e60. google scholar
  • 46. Malviya S, VOEPEL-LEWIS T, Burke C, Merkel S, Tait AR. The revised FLACC observational pain tool: improved reliability and validity for pain assessment in children with cognitive impairment. Pediatric Anesthesia. 2006; 16: 258-65. google scholar
  • 47. Hauer J, Houtrow AJ, Feudtner C, Klein S, Klick J, Linebarger J, et al. Pain assessment and treatment in children with significant impairment of the central nervous system. Pediatrics. 2017; 139(6). google scholar
  • 48. Weir FW, Hatch JL, McRackan TR, Wallace SA, Meyer TA. Hearing loss in pediatric patients with cerebral palsy. Otology & Neurotology. 2018; 39: 59-64. google scholar


PAYLAŞ




İstanbul Üniversitesi Yayınları, uluslararası yayıncılık standartları ve etiğine uygun olarak, yüksek kalitede bilimsel dergi ve kitapların yayınlanmasıyla giderek artan bilimsel bilginin yayılmasına katkıda bulunmayı amaçlamaktadır. İstanbul Üniversitesi Yayınları açık erişimli, ticari olmayan, bilimsel yayıncılığı takip etmektedir.