Follow-Up and Community Care of the Child With a Chronic Disease

EnglishTürkçe

CHAPTER


DOI :10.26650/B/CH32.2024.010.038   IUP :10.26650/B/CH32.2024.010.038    Full Text (PDF)

Approach to the Child with a Chronic Disease from Physical Medicine and Rehabilitation Perspective

Merve Damla Korkmaz, Nalan Çapan, Ayşe Resa Aydın

Due to changing living conditions, the age of occurrence of chronic diseases has decreased to childhood, and the lack of physical activity has been shown as a risk factor especially in cardiovascular diseases, obesity, diabetes, and cancer. Chronic diseases negatively affect the physical, cognitive, emotional, social, and behavioral development of children. Rehabilitation programs are applied to the patient and his/her family at an early stage and will positively affect all developmental stages. The World Health Organization recommended that children do at least 60 minutes of physical activity a day. Since physical inactivity negatively affects human health, individual, and social health expenses increase. Apart from genetic, environmental and biological risks, inactivity, and nutrition are the most important factors in the development of chronic diseases. The lack of physical activity resulting from chronic disease and disability reduces the endurance of children, leading to disease progression. When planning exercise programs for children with chronic diease, it is necessary to ensure family participation and its fun and sustainable implementation. Reducing screen time and adding physical activities with family and friends contribute to creating an active lifestyle. Physical activity is a part of the treatment of chronic diseases in children to not only prevent disease progression but also to increase the quality of life and ensure participation in daily life. In this section, the field of physical medicine and rehabilitation in chronic chest diseases, oncological diseases, and neuromuscular diseases common in childhood is emphasized.


Keywords: Asthma, cerebral palsy, disease, exercise, oncological
DOI :10.26650/B/CH32.2024.010.038   IUP :10.26650/B/CH32.2024.010.038    Full Text (PDF)

Fi̇zi̇ksel Tıp Ve Rehabi̇li̇tasyon Bakış Açısıyla Kroni̇k Hastalığı Olan Çocuğa Yaklaşım

Merve Damla Korkmaz, Nalan Çapan, Ayşe Resa Aydın

Değişen yaşam koşulları sebebiyle kronik hastalıkların görülme yaşı çocukluk çağına kadar inmiş ve özellikle kardiyovasküler hastalıklar, obezite, diyabet, kanser gibi hastalıklarda risk faktörü olarak fiziksel aktivite azlığı gösterilmiştir. Kronik hastalıklar çocukların fiziksel, bilişsel, duygusal, sosyal ve davranışsal gelişimlerini olumsuz yönde etkilemektedir. Hasta birey ve ailesine özel erken dönemlerinden itibaren uygulanacak olan rehabilitasyon programları çocukların tüm gelişim basamaklarını olumlu olarak etkileyecektir. Dünya Sağlık Örgütü verilerine göre çocukların günde en az 60 dakika fiziksel aktivite yapması önerilmektedir. Fiziksel hareketsizlik, insan sağlığını olumsuz etkilediği için bireysel ve toplumsal sağlık giderlerini de arttırmaktadır. Kronik hastalıkların oluşmasında genetik, çevresel ve biyolojik risklerin dışında en önemli faktörler hareketsizlik ve beslenmedir. Kronik hastalık ve engellilik sonucu oluşan fiziksel aktivite azlığı çocukların dayanıklılıklarını azaltarak hastalıklarının ilerlemesine neden olmaktadır. Çocuklara yönelik egzersiz programları planlarken aile katılımının sağlanması, uygulanacak programının eğlenceli ve sürdürülebilir olmasına dikkat edilmesi gerekir. Ekran sürelerinin azaltılması, aile ve arkadaşları ile yapılacak fiziksel aktivite sürelerinin arttırılması hareketli bir yaşam şekli oluşturulmasına katkı sağlamaktadır. Fiziksel aktivite, hastalıkların önlenmesinin yanı sıra çocuklarda kronik hastalıkların tedavisinin bir parçasıdır, yaşam kalitesinin arttırılması ve günlük yaşama katılımın sağlanması için büyük önem arz etmektedir. Bu bölümde, çocukluk çağında sık görülen kronik göğüs hastalıkları, onkolojik hastalıklar ve nöromüsküler hastalıklarda Fiziksel Tıp ve Rehabilitasyon branşının yeri üzerinde durulmaktadır.


Keywords: Astım, egzersiz, hastalık, onkolojik, serebral palsi

References

  • 1. Lozano P, Houtrow A. Supporting Self-Management in Children and Adolescents With Complex Chronic Conditions. Pediatrics. 2018;141(Supl 3):233-41. google scholar
  • 2. Çocuk ve Ergen İçin Kronik Hastalıklarda Fiziksel Aktivite Rehberi. Halk Sağlığı Genel Müdürlüğü. 1089. Ankara.; 2018. google scholar
  • 3. TC Sağlık Bakanlığı Türkiye Fiziksel Aktivite Rehberi. Türkiye Halk Sağlığı Kurumu, Sağlık Bakanlığı. C. 940. Ankara.; 2014. google scholar
  • 4. Philpott J, Houghton K, Luke A. Physical activity recommendations for children with specific chronic he-alth conditions: juvenile idiopathic arthritis, hemophilia, asthma and cystic fibrosis. Pediatr Child Health. 2010;15(4):213-225. google scholar
  • 5. Willeboordse M, van de Kant KD, van der Velden CA, van Schayck CP, Dompeling E. Associations between asthma, overweight and physical activity in children: a cross-sectional study. BMC Public Health. 2016;16(1):919. google scholar
  • 6. Winn CON, Mackintosh KA, Eddolls WTB, Stratton G, Wilson AM, McNarry MA, Davies GA. Effect of high-intensity interval training in adolescents with asthma: The eXercise for Asthma with Commando Joe’s® (X4ACJ) trial. J Sport Health Sci. 2021; 10: 488-498. google scholar
  • 7. Westergren T, Berntsen S, L0drup Carisen KC, Mowinckel P, Hâland G, Fegran L, et al. Perceived exercise limitation in asthma: The role of disease severity, overweight, and physical activity in children. Pediatr Allergy Immunol. 2017;28(1):86-92. google scholar
  • 8. Ding S, Zhong C. Exercise and Cystic Fibrosis. Adv ExpMed Biol. 2020;1228:381-91. google scholar
  • 9. Zeren M, Cakir E, Gurses HN. Effects of inspiratory muscle training on postural stability, pulmonary fun-ction and functional capacity in children with cystic fibrosis: A randomised controlled trial. Respir Med. 2019;148:24-30. google scholar
  • 10. Moola FJ, Garcia E, Huynh E, Henry L, Penfound S, Consunji-Araneta R, et al. Physical Activity Counseling for Children With Cystic Fibrosis. Respir Care. 2017;62(11):1466-73. google scholar
  • 11. Radtke T, Smith S, Nevitt SJ, Hebestreit H, Kriemler S. Physical activity and exercise training in cystic fibrosis. Cochrane Database Syst Rev. 2022;8(8):CD002768. google scholar
  • 12. Ward N, Stiller K, Holland AE. Exercise as a therapeutic intervention for people with cystic fibrosis. Expert Rev Respir Med. 2019;13(5):449-58. google scholar
  • 13. Baumann FT, Bloch W, Beulertz J. Clinical exercise interventions in pediatric oncology: a systematic review. Pediatr Res. 2013;74(4):366-74. google scholar
  • 14. Rosenhagen A, Bernhörster M, Vogt L, Weiss B, Senn A, Arndt S, et al. Implementation of structured phy-sical activity in the pediatric stem cell transplantation. Klin Padiatr. 2011;223(3):147-51. google scholar
  • 15. Krauth KA. Family-Oriented Rehabilitation (FOR) and Rehabilitation of Adolescents and Young Adults (AYA) in Pediatric Oncology. Oncol Res Treat. 2017;40(12):752-8. google scholar
  • 16. Daggelmann J, Krauth KA, Mailand P, Nopper S, Renniger M, Bündgen L, et al. Einfluss einer vierwöchi-gen familienorientierten Rehabilitation auf die motorische Leistungsfahigkeit, Lebensqualitat und Fatigue bei krebskranken Kindern und gesunden Geschwistern [Effects of a Four-Week Rehabilitation Program on Motor Performance, Quality of Life and Fatigue in Childhood Cancer Patients and Healthy Siblings]. Rehabilitation (Stuttg). 2017;56(2):119-26. google scholar
  • 17. Houdeshell MJ, Thomas KM, King AA, L’Hotta AJ. Limitations of Current Rehabilitation Practices in Pediatric Oncology: Implications for Improving Comprehensive Clinical Care. Arch Phys Med Rehabil. 2021;102(12):2353-61. google scholar
  • 18. Shepherd E, Salam RA, Middleton P, Makrides M, McIntyre S, Badawi N, et al. Antenatal and intrapartum interventions for preventing cerebral palsy: an overview of Cochrane systematic reviews. Cochrane Database Syst Rev. 2017;8(8):CD012077. google scholar
  • 19. Keeratisiroj O, Thawinchai N, Siritaratiwat W, Buntragulpoontawee M, Pratoomsoot C. Prognostic predic-tors for ambulation in children with cerebral palsy: a systematic review and meta-analysis of observational studies. Disabil Rehabil. 2018;40(2):135-43. google scholar
  • 20. Sung YH, Ha SY. The Vojta approach changes thicknesses of abdominal muscles and gait in children with spastic cerebral palsy: A randomized controlled trial, pilot study. Technol Health Care. 2020;28(3):293-301. google scholar
  • 21. Novak I MC, Adde L, Blackman J, Boyd RN, Brunstrom-Hernandez J, Cioni, et al. Early, Accurate Di-agnosis and Early Intervention in Cerebral Palsy: Advances in Diagnosis and Treatment. JAMA Pediatr. 2017;171(9):897-907. google scholar
  • 22. Aydin A.R, Nur H. Family-Centered Approach in the Management of Children With Cerebral Palsy. Turk J Phys Med Rehab. 2012;58:229-35. google scholar
  • 23. King S, Teplick R, King G, Rosenbaum P. Family-centred service for children with cerebral palsy and their families: a review of the literature. Semin Pediatr Neurol. 2004;11:78-86. google scholar
  • 24. Niedzwecki CM, Thomas SP, Schwabe AL. Cerebral Palsy. İçinde: Cifu DX, editor Braddom’s Physical Medicine and Rehabilitation. 6. bs Philadelphia: Elsevier; 2016. s. 1006-26. google scholar
  • 25. Dursun N. Serebral Palsi Rehabilitasyonu. İçinde: Oguz H, editor Tıbbi Rehabilitasyon. 3. İstanbul: Nobel Tıp Kitabevleri; 2015. s. 819-836. google scholar
  • 26. Brooks JT, Sponseller PD. What’s New in the Management of Neuromuscular Scoliosis. . J Pediatr Orthop. 2016;36(6):627-33. Dursun N. Serebral Palsi Rehabilitasyonu. İçinde: Oguz H, editor Tıbbi Rehabilitasyon. 3. İstanbul: Nobel Tıp Kitabevleri; 2015. s. 819-836. google scholar
  • 27. Colver A, Fairhurst C, Pharoah PO. Cerebral palsy. Lancet. 2014;383(9924):1240-9. google scholar
  • 28. Iftikhar M, Frey J, Shohan MJ, Malek S, Mousa SA. Current and emerging therapies for Duchenne muscular dystrophy and spinal muscular atrophy. Pharmacol Ther. 2021;220:107719. google scholar
  • 29. Heutinck L, Jansen M, van den Elzen Y, van der Pijl D, de Groot IJM. Virtual Reality Computer Gaming with Dynamic Arm Support in Boys with Duchenne Muscular Dystrophy. J Neuromuscul Dis. 2018;5(3):359-72. google scholar
  • 30. Vry J, Schubert IJ, Semler O, Haug V, Schönau E, Kirschner J. Whole-body vibration training in children with Duchenne muscular dystrophy and spinal muscular atrophy. Eur J Paediatr Neurol. 2014;18(2):140-9. google scholar
  • 31. Bolton DA, Cauraugh JH, Hausenblas HA. Electromyogram- triggered neuromuscular stimulation and stro-ke recovery of arm/hand function: A meta-analysis. J Neurol Sci. 2004;223(2):121-7. google scholar
  • 32. Bryden AM, Ancans J, Mazurkiewicz J, McKnight A, Scholtens M. Technology for spinal cord injury rehabilitation and its application to youth. J Pediatr Rehabil Med. 2012;5(4):287-99. google scholar
  • 33. Nichter S. A clinical algorithm for early identification and intervention of cervical muscular torticollis. Clin Pediatr (Phila). 2016;55(6):532-536. google scholar
  • 34. Kim SN, Shin YB, Kim W, Suh H, Son HK, Cha YS, et al. Screening for the coexistence of congenital muscular torticollis and developmental dysplasia of hip. Ann Rehabil Med. 2011;35(4):485-490. google scholar
  • 35. Gundrathi J, Cunha B, Mendez MD. Congenital Torticollis. İçinde: StatPearls [Internet]. Treasure Island (FL): StatPearls Publishing; 2022. google scholar
  • 36. Kaplan SL, Coulter C, Sargent B. Physical Therapy Management of Congenital Muscular Torticollis: A 2018 Evidence-Based Clinical Practice Guideline From the APTA Academy of Pediatric Physical Therapy. Pediatr Phys Ther. 2018;30(4):240-90. google scholar
  • 37. Heidenreich E, Johnson R, Sargent B. Informing the Update to the Physical Therapy Management of Conge-nital Muscular Torticollis Evidence-Based Clinical Practice Guideline. Pediatr Phys Ther. 2018;30(3):164-175. google scholar
  • 38. Kuo AA, Tritasavit S, Graham JM Jr. Congenital muscular torticollis and positional plagiocephaly. Pediatr Rev. 2014;35(2):79-87. google scholar


SHARE




Istanbul University Press aims to contribute to the dissemination of ever growing scientific knowledge through publication of high quality scientific journals and books in accordance with the international publishing standards and ethics. Istanbul University Press follows an open access, non-commercial, scholarly publishing.